Endometriosis After Hysterectomy- Are Relapses Common?
Experiencing endometriosis after hysterectomy is a likely possibility, and is why treatments such as Mirena may still be needed. This may come as a surprise to you, especially if you have been under the impression that a total hysterectomy (removal of the entire uterus, ovaries, and part or the entire cervix) can provide relief from the painful symptoms caused by endometriosis.
Although it does sound logical that the removal of the organs infected by endometriosis would put a stop to the disease, this, unfortunately, is not the reality for a number of women. In fact it is estimated that 10-15 percent of women with endometriosis, who undergo a hysterectomy, experience an endometriosis recurrence after 1 – 3 years following the procedure, and as many as 50 percent have a recurrence after 5 years.
How can the return of endometriosis after hysterectomy be possible? First and foremost, there is no cure for endometriosis. Secondly, it’s a known fact that implants (endometrial tissue) can be found outside of the uterus and ovaries, and can occur throughout the pelvic cavity and beyond (I.E. bowels, bladder and rectum). Therefore, if implants occur in areas outside the uterus, a total hysterectomy will not remove all of the disease.
That being said, there are surgeons that will attempt to remove any implants they find in other regions aside from the reproductive organs. However, there is still a high possibility that some of the disease will be left behind, as some implants are microscopic and can go undetected.
Another problem that can cause endometriosis after hysterectomy is hormone replacement therapy. If a woman undergoes a total hysterectomy, she has lost her ovaries, and is, therefore, in full blown menopause. Although menopause can be beneficial in relieving endometriosis symptoms, because it stops the production of estrogen (the hormone that feeds the disease), the female body requires a certain level of estrogen in order to function properly.
In other words, while endometriosis may no longer be a problem, unpleasant menopause symptoms due to lack of estrogen (I.E. hot flashes, headaches, vaginal dryness, bone loss, etc.) will be. Hence, women who have undergone a total hysterectomy, and do not take hormone replacement therapy, may find relief from their endometriosis but not their menopausal symptoms, or vice versa. These women often find themselves in a no win situation.
Are there ways to treat endometriosis after hysterectomy? Yes. The following are some treatment methods you may want to consider -
• Control your diet – Find out what foods you should avoid that can trigger endometriosis symptoms or make them worse.
• Medical therapies – There are different remedies such as oral contraceptives, and the drugs Progestin and Danazol, which help to prevent the growth of endometrial tissue. You may also consider taking over-the-counter medication such as NSAIDs (nonsteroidal anti-inflammatory drugs – I.E. aspirin, ibuprofen) to help alleviate painful symptoms.
• Alternative remedies – non-drug therapies that may be useful include acupuncture, acupressure, aromatherapy, hypnosis, messages, herbal remedies, etc.
Essentially, when it comes to treatment, the best course of action you can take is to talk to your doctor about your options to find out which ones are right for you.
Finally, if you have endometriosis or know someone who does, and are thinking about having a total or partial hysterectomy, it is imperative that you explore other treatment options first. The chance of a recurrence of endometriosis after hysterectomy is high enough that it shouldn’t be ignored. There is no reason to put your body through the stress of such extreme surgery, when there are other options available to you.
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[...] Finally, if you have endometriosis or know someone who does, and are thinking about having a total or partial hysterectomy, it is imperative that you explore other treatment options first. The chance of a recurrence of endometriosis after hysterectomy is high enough that it shouldn’t be ignored. There is no reason to put your body through the stress of such extreme surgery, when there are other options available to you. Have you signed up for the free newsletter? It’s a great way of staying on top of the latest endometriosis news and treatment options. Sign up today and discover signs of endometriosis and what the different stages of endometriosis are, plus the endometriosis treatment options. [...]
I had a partial hysterectomy six years ago and am now suffering terribly from the pain associated with endometriosisi that is conected to mt bowel. A laprioscopy confirmed the position and diathermy can give temporary relief, I was devestated last week whebn my worst thoughts were confirmed and I know the vicious cycle that I am back into.
I had a partial and then full hyst, the latter a year ago, and now the pain is coming back again. I am so tired of being told that it can’t come back without reproductive organs. I’m 30 and have had 9 surgeries in 3 years and am tired of this.
I have had a partial hysteretomy and am still having server pain monthly that is crippling. I can not take any hormon medications and am running out of options. This is basically stopping me from living life. There has got to be a better solution then suffer though it.
hi i had a complete hysteretomy 14 months ago, aged 38. i now have the pain returning, my stomach is looking like i’m pregnant again,i’m tired etc etc. i didn’t now until today that endometriosis can reaccur again after a complete hysteretomy,i wasn’t informed of this before surgery!!!!!
i had a full hysteretomy 8 months ago and now my pain is back and i am 23 i do not know wht to do i have been dealing with it for 8 years and now it s back they want to put me on some new meds i was wondering if anybody here has ever taking them or has heard of them the meds are amitriptyline and aygestin if you could help me that would be great thanks
Marcie
I’m really sorry to hear that your endometriosis is returning after your hysterectomy.
Here’s an overview of the meds that your doctors are suggesting:
Amitriptyline is an antidepressant drug that is also used to treat chronic pain. The dosages are quite a lot lower for pain management than they are for treating depression.
It does have some side effects to watch out for including:
increased heart rate
blurred vision
weight loss or gain
dry mouth
constipation
It can also cause you to feel sleepy so be careful when driving. And there are some withdrawal symptoms if you stop taking it abruptly, but by lowering the dose slowly you can avoid these.
Well all that sounds pretty grim Amitriptyline is quite commonly prescribed for endo and can help to manage pain effectively.
Aygestin on the other hand falls under the drug category of progestins. It is commonly found in many oral contraceptives. When prescribing for endometriosis the dosage is much higher.
Talk to you doctor about your concerns with the meds.
I would also recommend that you have a read through the rest of the blog posts as there are a number of natural treatments and dietary changes that can help relieve symptoms.
I had a partial hysterectomy. I was great for a year. Now I’m beginning to swell again and have terrible night sweats. Just wondered if that was normal.